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La. Boy with rare disease wants to get 1M Facebook fans

3 years 10 months 3 weeks ago June 30, 2013 Jun 30, 2013 Sunday, June 30 2013 June 30, 2013 4:11 PM in News
Source: WTAE
By: AE Stevenson/WATE Staff

PITTSBURGH - 6-year-old Alexander Moses or, as his brothers call him, "Xan" has a single goal in mind. He want to reach 1 million facebook likes on his page.

Jennifer Moses moved her sons from Louisiana to Pittsburgh, hoping the doctors at Children's Hospital of Pittsburgh of UPMC could diagnose the strange symptoms that are changing Xan before her eyes.

"I know time is running out for him," Moses said. "I know it in my gut. I see it. I'm watching it happen."

The family now lives at the Ronald McDonald House, where every day, a rare neurodegenerative disease takes another part of Xan away. He has had surgeries, scans and genetic testing. All his doctors know is that the boy's brain is degenerating, but no one knows why.

Xan is a big LSU fan, and the online support helps keep the pain bearable. He enjoys hearing the sweet well-wishes of strangers who manage to take his mind off the pain ravaging his body.

One million is a big number, but the little boy is confident. "I think I can do it," Xan said.

As Moses watches her son slip away, there's little that the young single mother can do, and even less that she can say.

"I love him the very best that I can, with all that I have," she said. "Every minute that I have him, I 'snuggle bug' with him at night. He cuddles up next to me and holds me and puts his arms around me and talks about what's going on with him, and I soak it up.
"I want him to know that he's made me a better person, that he changed my whole life just by being in it."

Join Xan's Fans Facebook Page



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